First of all Luiz, with all due respect, you're wrong and Sean is
right. Historically, America has had a very influential eugenics
movement, and Hitler definitely got influences from there. Read up on
it a little, and you might be surprised.
Okey. With some dread, I have been waiting for this subject to pop up
here. It is not one I want to tackle, but one I every now and then
must face.
Now that the time has come, I waited for the discussion to mature a
little bit so I could get the hang of the general mood. Fortunately it
seems I will not have to go against the majority opinion. Big thanks
to Fred, you've been to the point as usual.
To those folks who have dreams of getting rid of the "unworthy" and
"defective" among our midst... well... if you got your way, you would
just have killed or sterilized me. Congrats for the achievement. You
must now feel very proud of yourselves, having saved the world from
the scourge that is the imperfect me. Taking into account the severity
of my genetic
illness, it is very much possible I would never have
seen the light of day, as you would most probably have "mercy killed"
me in the womb.
From time to time I have to defend my very right to exist against your
kind. You have no idea how strange it feels to have to do that in a
world that in general scoffs those who refuse humanity from people
because of factors that are beyond their control. A black person or a
Jewish person is not guilty of one's genes, but a disabled person
still is, for many, free prey... even if we live in an age where we
have much greater possibilities for actually helping them -- as an
alternative to killing them -- than ever before.
I would say there are three kinds of arguments that are often put
forth to justify killing or forcibly sterilizing me. They are the
"compassion argument", the "economy argument" and the "evolution
argument".
I find the compassion argument to be the worst of all, as it
masquerades to be something that it is not. It is often used by people
who are completely unable to see the disabled person in any other
terms than those of his disability. It does not seem to count that I
am personally happy with my life and active in it, that my parents
have told me they would not want anything else in place of me and that
I have a network of friends whom, I like to think, are actually
getting something from spending time with me. Otherwise they would
just hang out with somebody else, I presume. Oh no. My life still is
apparently so horrible that in their opinion it would have been better
for me if I had never been born...
It is not up to them to judge if my life is worth living or not. I am
the only person who can say anything about that.
Now, the argument from cost... I won't make the mistake of giving it
any legitimacy by meeting it on its level... I refuse to weigh a human
life by its monetary value. It can be said, however, that I do believe
the percentage of "significantly disabled" individuals will remain
fairly constant. On one hand, we have sporadic mutations which happen
at a natural, steady rate. On the other hand, advances in medicine
will increase the number of people who are viable, but I do believe
that these same advances will also help people at the other end of the
spectrum to lead lives that are more and more productive. Last, I will
note below that the 1930's idea of "degenerates" flooding the gene
pool is unlikely.
The evolutionary argument is flawed as well. As was said in a previous
post, we already have as good a system in place we could possibly hope
for. Mother Nature will take care of things as she sees fit, and some
ideologue meddling with the process will just cause a mass extinction
when a blonde-killing virus hits our exclusively blonde and blue-eyed
population... disabilities do not yield an evolutionary advantage, and
therefore it is highly unlikely that genes that cause them would
spread. However, if some gene does beat the odds and does spread,
there probably is a very good reason for it.
All the above also simply ignore the simple fact that we're talking
about human beings here. No matter how much you disliked that Down's
kid because he didn't fit your ideal, he's still a human being, just
like you are. Yes, you can accuse me of being a sentimentalist, but
I'd much rather be one than... well... you. Fred was very correct in
pointing out that just as much you would want to weed them out, I
would be just as justified in wanting to do the very same thing to
you.
By the way, if you're losing sleep at the thought of the Down's people
breeding, I can reassure you... they won't, because they can't. No
need to force them to a nice little doctor's appointment.
Suppose you didn't want to outright kill me, but you would want to
force me into sterilization. What exactly do you think I am? A stupid
farm animal? I am perfectly aware of the gene I carry. I decided a
long time ago that if the opportunity presented itself, I would choose
not to become a biological father because I don't want to pass this on
to my possible offspring.
This is a decision that is mine to make, not yours. There is no reason
to assume that simply because my DNA contains a specific sequence, I
should be made to lose a fundamental human right, namely, the
integrity of my body.
I do have some power over whether the children I might raise have the same
illness as I do, and that will be on my conscience. Nevertheless,
whatever the outcome, the child will in the end primarily be a person
and
my child and not just some monstrosity that came about
because of my selfish desire to be a parent... but as I said, there are many kids in the world who need parents and I don't need to be actually making them myself. I do believe I would make a far better father than someone who demands their children fulfill their criteria of perfection, lest they deserve death...
I have a little mind-game for you who think it would have been a good
thing had I been killed before birth:
Would you be capable of killing me right now?
Whether you did it some 25 years ago or now shouldn't make much
difference. As a matter of fact, I would gladly volunteer for
slaughter, provided you did it personally and in public. We could even
try to find a jurisdiction where I could make sure you were not
accused of murder.
It would be interesting to see how many people could actually go all
the way to the point when they were personally doing the cleansing
they dream of.
Talk is cheap. Anybody
really up to putting a defective out of his
supposed misery?