Asperger's Syndrome

Bucephalus

Shooting from the lip....
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My friends, I need your' help.

Does anyone have any experience of coping with Asperger's, either personally or in a close family member/friend?

Given the personal nature of what I'm asking, I realize that you may not want to discuss this in an open forum; if so, perhaps you will consider replying by PM - I promise complete discretion.
 
One of are most popular posters has it and is open about it, I am sure he'll be here soon. ;)
 
Moderator Action: Trolling deleted
Please read the forum rules: http://forums.civfanatics.com/showthread.php?t=422889

There are several aspie's on this board. Xanikk is the most notable, but he got addicted to WoW thanks to the jerks in #fiftychat who like to ruin people's lives, so you might be better off talking to swedishguy or bill3000.
 
I have Asperger's Syndrome and lots of experience coping with it.
 
Using AS as an excuse for not being able to have friends is the worst possible way to cope with it. You just have to try harder than the average person to socialise.
 
I have Asperger's Syndrome and lots of experience coping with it.

Thanks for such a quick reply, I really appreciate it.

It has become apparent that my four year old daughter has AS, and as you might expect, my head is in turmoil - I have so many unanswered questions.
I've read all that I can find on the subject, but - aside from one very interesting autobiography - it is all in general terms, written by so-called 'experts'.

What I want to know is how my daughter views the world; which aspects of her behavior can be put down to AS, as opposed to just being a four year old;
what does the future hold for her; how can I help her?
 
What I want to know is how my daughter views the world; which aspects of her behavior can be put down to AS, as opposed to just being a four year old;
what does the future hold for her; how can I help her?
She probably views the world much like any four year old at that age: full of things she doesn't understand. Probably the best way to begin understanding AS is the "higher logical intelligence, lower social intelligence" model. I suggest you be willing to explain to her and take time to give a good explanation. If you don't know, admit it. If there is no reason for something, or it's just a social convention, admit that. Young people with AS will often ask "why?" until they run into "it is that way" or "just because". Explaining the concepts of social conventions, unwritten rules, unspoken norms etc. will help.

Her future will probably hold a lot of wondering why people lie and act irrationally and break promises and act mean to her. Your daughter will poke at things much like any four year old, but she's more likely to catalogue and list things and ask for explanations. She will probably violate a bunch of unwritten rules, get shouted at, and then object "But nobody told me that!"
The problem is, she's perfectly right from her own point of view in such a situation. She's been expected to abide by a rule that nobody told her to abide by and nobody even told her about.

You can help her a great deal by being honest, telling her what to expect, warning her that people won't behave the way she would behave or even the way she thinks they should behave, and trying to explain what unwritten rules govern a situation she's going to enter.

I'll get back to you more later.
 
I have Asperger's as well. It's not the end of the world, the most important thing is to be understanding to your daughter and explain everything that she asks to the best of your knowledge, like Erik already said.

My own problem with it was, and still to a certain extent is, that even after I had learned (I had to literally learn how to behave in certain situations, to people without Asperger's such things come naturally) how to cope in all sorts of situations with people, I still couldn't grasp the concept of facial expressions. (And, to some extent, I still don't)

I mean, yes I do understand laughing and smiling for jokes and stuff, but in most situations I have no idea what other people are thinking based on their facial expressions, I can't "read behind the lines" so to speak. This is something which makes me uncomfortable in some scenarios and social situations, and you should be prepared for your daughter to experience something similiar. Be supporting of her as best as you can.

Despite all the difficulties in making friends and social situations, I've still managed to get a good group of friends. Having Asperger's does not prevent that at all; I was blessed by having good and understanding parents who took their time with me, and by my friends who accept me strange and random though I at times might be.
 
It has become apparent that my four year old daughter has AS, and as you might expect, my head is in turmoil - I have so many unanswered questions.
My lil' half brother had AS. He had a real sh**ty time in him mainstream school - they just weren't cut out to deal with him (and it's not all that hard really) and sent him home for bad behaviour about twice a week.

So we sent *him to a small school some way away where they had more experience in dealing with AS and he did vastly better there. Make sure you choose a school that knows how to deal with AS properly and you'll make a world of difference.
 
A girl with AS is quite rare, and aside from the statistics, it seems to me that Asperger's is usually a very "male" thing - social blindness and high logical intelligence are stereotypical "male" things. Does anyone here who has experience with AS have much of an idea about how social expectations about gender roles affect girls with AS, or are they aware of any issues and difficulties specific to girls?
 
Double posting to add: Wrong Planet - this may or may not help you, it's an Asperger's online community, seems to be reasonably big. The forums have both a parenting section and a women's issues section so they're probably helpful.
 
et tu Erik?
that's an...surprise.
For some reason, I am not surprised at all :mischief:

Anyway, I have (mild) Asperger too. It really isn't that much of a problem, except that you'll have to accept that she might get less friends than other children when she gets older. As long as she has at least one, that's okay. You could do all kinds of things to help her get more friends, but it will usually have the opposite effect of what you wanted, so I suggest you will not. You can also see asperger in little things like not getting jokes, or being very interested in something very specific. Don't be surprised if she can watch birds in the garden non-stop for 4 hours or something.

There's a chance she will get bullied because of 'weird' behaviour. You can't know that beforehand for sure though. For example, I behaved quite weird when I was a kid (still do at tmies ;)) but I wasn't bullied.

It's not that bad really, it's just slightly different. Try to get some professional help though, we're really just a bunch of amateurs on a Civ forum ;)
 
wait a minute, I got aspergers, Erik has aspergers, Xanikk has, Sirdanilot has and bill3000. Hold on, is there an connection with playing civ and aspergers? :eek: ;)
 
Thank you all for your' insight; much of what has been said rings true.

Perhaps you can help with a specific problem: when she first started school she came home wet, having urinated herself rather than ask to use the toilet.
We got around it by arranging with the teachers that she may go to the toilet without asking; however, there are inevitably times where this isn't appropriate (during assembly, PE, etc). At such times she will wet herself because she is - in her own words - "afraid to let the other children hear her speak". Does anyone have any coping strategies that I can teach her?
 
A girl with AS is quite rare, and aside from the statistics, it seems to me that Asperger's is usually a very "male" thing - social blindness and high logical intelligence are stereotypical "male" things.
Yes, there's a reason that Simon Baron-Cohen (not to be confused with various other Cohens) wrote a book on autism and AS under the title "Men, Woman and the Extreme Male Brain". ;)

Does anyone here who has experience with AS have much of an idea about how social expectations about gender roles affect girls with AS, or are they aware of any issues and difficulties specific to girls?
In my experience, cliques are anathema to people with AS, and girls form socially stronger cliques than boys, so... :(

Double posting to add: Wrong Planet - this may or may not help you, it's an Asperger's online community, seems to be reasonably big.
That's good.

My lil' half brother had AS. He had a real sh**ty time in him mainstream school - they just weren't cut out to deal with him (and it's not all that hard really) and sent him home for bad behaviour about twice a week.

So we sent *him to a small school some way away where they had more experience in dealing with AS and he did vastly better there. Make sure you choose a school that knows how to deal with AS properly and you'll make a world of difference.
Oh yeah, I should have mentioned this in my post. I figure I'll just add more as I go along and as Bucephalus asks more stuff.

Personally, I was pretty much a vigilante through most of primary school. Half the time, though, the teachers agreed that I was in the right and the person was being a liar and an idiot and deserved to get dragged by his legs out of the room. Then they wrung their hands that they had to abide by the rules and suspended me from the class trip to a rock farm or whatever.

Bucephalus, your daughter will probably get into fights and get marked for bad behavior and generally disobey whatever rules, written or unwritten, a school or kindergarten has that she rejects. You can try to find a smaller/better school as brennan suggests, but you should also prepare for this.

two things you gotta remember:
1. it's not a disease.
2. you can't "cure" her.
:yup:
But for all that, there *are* deficiencies relative to the average that she should practice overcoming.


---

Bucephalus - has your daughter begun speaking and/or reading yet? (If you want to switch to email and/or PM at this point, that's fine. For the record, I began reading a year early and speaking half a year late, and apparently it varies a great deal.) Reading is probably one of the safest ways for her to start learning about how "real people" work, if the books describe both what people are doing and what people are thinking, with the "safety valve" that she can always put the book away if she doesn't like it.
 
Double posting to add: Wrong Planet - this may or may not help you, it's an Asperger's online community, seems to be reasonably big. The forums have both a parenting section and a women's issues section so they're probably helpful.

Thanks, I'll check it out.

It's probably not relevant, but for the record, I'm a man.
 
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