aimeeandbeatles
watermelon
- Joined
- Apr 5, 2007
- Messages
- 20,082
Are there any diagnostic tests for ME/CFS, or is it "eliminate all the other causes first" diagonosis?
Are there any diagnostic tests for ME/CFS, or is it "eliminate all the other causes first" diagonosis?
Not yet. Specialized studies and specialized equipment can sometimes find potential markers that differentiate us from others, but nothing consistently reliable. The microclot theory from long COVID research has some promise but nothing definitive. At this time, studies and focused investigation can pinpoint that we are experiencing physiological dysfunction (i.e., not psychosomatic or imagined), but it can't pinpoint a cause, a marker, or a realistic treatment.Are there any diagnostic tests for ME/CFS, or is it "eliminate all the other causes first" diagonosis?
Anecdotally I see people have the most issues with high humidity and high heat. Most summers I rarely if ever go outside, and if I do, it's at night. The past couple years I made okayish strides at tolerating the heat and being in the sun, but nothing remotely near that of a normal person. And I still sweat like a pig.What effect does the weather have on symptoms, if any?
Anything that works the body even a tiny bit more is bad , so heat. Have to stay in aircon on hot day.What effect does the weather have on symptoms, if any?
Fires! Well shoot.It doesn't help that you're in a region where forest fires are common in the summer. I have no idea how you survived the heat dome in 2021. It nearly sent me to the hospital here.
Fires! Well shoot.
I lost every last facking thing except the car I escaped in.
Was too sick to pack stuff and escape as well. So, disabled, homeless and then hospitalised; where they tried to make me exercise. Still screwed and housebound.
At my severity, basically anything will result in PEM. My focus is instead on deciding how much I can tolerate/risk. It does not catch me by surprise.Do you know right away when you've overdone it and are going to get PEM? How often does it catch you by surprise?
Exhaustion can hit straight away. Result of having done too much can hit me 12 hours later too.Do you know right away when you've overdone it and are going to get PEM? How often does it catch you by surprise?
Yep.It’s similar but sooooo different from depression fatigue.
That is actually very good.If you are ever curious how fatigue manifests in disabilities like ME/CFS and long COVID, this article from The Atlantic is surprisingly decent. Non-paywalled link: https://archive.is/Xnut6