What Makes Your Blood Boil?

Lack of empathy. That pisses me off more than anything these days.

Such as we see evidenced in this thread.
Berzerker, I am going to assume you do mean well, but you're still being judgmental and lecturing us as though you live in our bodies and know what we feel capable of doing and what our risks are.

All the exercise in the world isn't going to fix what the ultimate cause of all this is - in my case. A medical breakthrough would. But since there are doctors who still refuse to admit that two of my conditions even exist/should be treated the new way instead of the old way, I'm not confident that any breakthrough is going to happen in my lifetime.

I had to nearly die before my doctor would even begin to take things as seriously as they actually were. Her answer to severe ulcers? "Don't let yourself get stressed." The real answer? Tests that confirmed what was going on and an aggressive course of antibiotics, plus a change in diet to eliminate lemons, limes, oranges, and grapefruit, plus medication I'm going to be on for the rest of my life. That was 16 years ago and I haven't had any major problems since (too many tomatoes can be a problem, but that's why plain soda crackers are a staple in this household).

I had to fight to get those tests done, and it started with a semi-loud shouting match in the lounge at the hospital when I told her I'd been reading up about it, and I didn't believe that nothing could be done. Ditto for the fibromyalgia - try to explain to someone who's never experienced it, how you can feel numbing and tingling in the same body part and it comes and goes so fast that it seems to be happening at the same time... and it's accompanied by pain that's sometimes so intense that you literally scream. The left side of my left hand is usually numb to some degree, but the fingertips feel like I'm either being pricked with sharp needles or there are ants crawling over my hands. Just try to explain that to people and add that you sometimes can't tell the difference between wet and dry... and they look at you like you've gone nuts. Things got to the point where I couldn't pet my cats, even the one with the softest fur, because it hurt too much. Even air hurt. She kept dismissing that, preferring to believe that I was lying, or was a hypochondriac.

After years of this (and after my hospitalization had passed), she finally sent me to a specialist. Five minutes after I walked into his office (using the canes; I was finally on medication that had helped improve things so I didn't need the wheelchair anymore), the specialist said, "There's no doubt about it. You have fibromyalgia."

I just sat there and cried. After so many years, somebody finally believed what I was saying.

So... yes, some kinds of exercise will help. Some kinds won't. And all the exercise in the world isn't going to fix some things (the things I've mentioned aren't the complete list; some of it's too personal for a public forum). Please stop assuming that what works for you will work for other people.

My wife has some issues along these lines as well.

We are likely going to move to Canada, as if our health issues get to bad we'll at least have basic health insurance.

Tying health insurance to the ability to work is like dumping water on a drowning man's head.

Best of luck!
 
Any improvement I've seen over the past few years as a result of exercise has been like a house of cards: fragile and temporary. It's not a reliable thing and it consumed my life. I was also a complete git because the intensified symptoms were gradually getting worse instead of better. In two years of excruciating effort I was rewarded with the ability to be on my feet for 5 hours in a day without being bedridden the day afterward... and lost it all as a result of a single bout of illness. Through those two years I experienced nothing worth living for, alienated everyone close to me, and watched most of my secondary symptoms get worse. Was being able to be on my feet for 5 hours a day nice? Sure. Could I make use of it, enjoy that ability, and use it to snowball to better improvements elsewhere? No. It was a monumental effort that led nowhere.

That is the problem with a condition that is degenerative. You can work as hard as you want to be the very best you can physically be... and it won't be enough. That work cannot be tested or it will break immediately. There is no way to balance between enjoying the fruits of your labour and the effort required to be capable for it. My doctors agree with me. Medical science agrees with me. If your body is compromised and cannot operate as it should, the standard recommendations for healthy living are either necessary or ineffectual. Most of the time it needs to be adapted to our limitations. A hundred percent of the time we're told to temper our expectations because we will never experience the gains other people experience when they make good decisions.

The majority of my time is spent recovering from simply being alive. I have no room for quick fixes or people who tell me that all I need to do is exercise to be better. I know what it was like to be healthy and to see the gains of effort. I now also know what it's like to have nothing and to watch your body deteriorate helplessly. I've spent the latter part of my teenhood and the entirety of my adulthood seeking answers and solutions. It is unlikely that anyone here can tell me something I haven't already heard or attempted. It's equally unlikely that someone telling me that all I need to do is exercise and I won't have mobility limitations anymore will suddenly make that true.

Ugh, now I know why you reacted so badly to my postings about hunter-gatherers having optimal human health. The only advice I can give you is that your mind is still healthy. Is there any reason you couldn't be a lawyer or academic?

I completely agree with your assessment that a lot of advanced medicine/modern psychology/treatment is all about finding something to cling onto and desperately fitting it under some label known to the medical community (if that's even what you were trying to say, sorry if I am putting words into your mouth). There's some even better examples like "phantom pain", "restless leg syndrome" and so on where we have even less of an idea what's going on. I have my own theories about this, but that's for another time.

More interesting is pondering solutions. Since I've quite read up on drugs and the American pharma industry, I think this should be one of the areas where we could succesffully reduce suffering. I cannot think of a single country in this world that pops out opiates or opioids (that are, in some cases, more than 1000x as strong as opium, far stronger than heroin..) like the US as if it was some form of treatment, when really it is only used to fight the symptoms, not the disease itself. A lot of "the basked of deplorables" suffer really bad. "White Trash" neighborhoods are riddled with opiate or amphetamine addiction. Funnily enough the worst drug of them all comes straight out of the hospital: Fentanyl. People die every year because they get the dosage wrong.

The older I get the more I fear "progress", or rather the ideology of clinging onto the idea that scientific advancement and economic growth can somehow fix all of our problems. You don't have to be an anti-vaxxing paleo hippy to realize that some things are going sour. Digitizing one's social life makes one detached, studies correlate overt social media use with either depression or narcissism. Clickbait, 30-second-YouTube-videos, instant gratification have killed my attention span. How are you resisting the urge of getting trapped in the cybervortex?

How are you? I'm planning to quit entirely - no screens. Hopefully I'll avoid the major pitfalls and won't get sucked back.
 
Last edited:
How are you? I'm planning to quit entirely - no screens. Hopefully I'll avoid the major pitfalls and avoid being sucked back.

That's very nice to hear, commendable even. I am not doing that bad, though I'm sure I've done a lot of damage in my youth. Went through a pretty hardcore WoW addiction in my early teens and still spent most of my time in front of a screen in my late teens. I managed to quit watching TV about 7 years ago, but am still hooked on the internet. Nowadays I go out more, try to find hobbies/activities that cannot be done on a screen and so forth, but really it's not enough.

Going Cold Turkey might actually be the best way to quit. Quitting in and of itself won't be that hard, but not coming back to me feels like a Sisyphus task. Especially considering how important it is to network properly- online and offline, in order to find a good job.

For me, realistically, I will probably never quit. I don't have that insane willpower anymore that helped me lose almost 80 pounds, I've gotten far too comfortable. It is disappointing for sure, but I have other priorities in life now.

What are your main reasons to quit screens? What else do you want to do with your time? How are you planning to stay in touch with your peeps?

On a completely unrelated note: Remember your thread about the only-meat diet where we shortly discussed fasting? I'm planning to do it in the next few months and will inform you/maybe make a thread to see how it goes.
 
We are likely going to move to Canada, as if our health issues get to bad we'll at least have basic health insurance.

Have you got this process started? It's not easy to emigrate here. I think your best bet is if you have some specialized skills that could get you employed as a doctor or something similar, but don't quote me on that.
 
Digitizing one's social life makes one detached, studies correlate overt social media use with either depression or narcissism. Clickbait, 30-second-YouTube-videos, instant gratification have killed my attention span. How are you resisting the urge of getting trapped in the cybervortex?
A short attention span is a real problem nowadays. Mine is far worse than it used to be, when it's so easy to flit between email, forums, the news site I read and comment on, watching a quick video, playing a turn or two of Civ... all in the same half-hour. I've become so used to no commercials online, that it's a chore to watch TV (unless it's something like PBS). OTOH, binge-watching stuff on Netflix or YouTube (someone posted years' worth of Bonanza episodes!) is something I seem more than able to not get distracted when indulging in my favorite series.

Lack of empathy. That pisses me off more than anything these days.

Such as we see evidenced in this thread.


My wife has some issues along these lines as well.

We are likely going to move to Canada, as if our health issues get to bad we'll at least have basic health insurance.

Tying health insurance to the ability to work is like dumping water on a drowning man's head.

Best of luck!
Thank you.

Which part of Canada do you have in mind? You need to research this carefully, as some provinces cover different things, and sometimes for different age groups. And if she needs disability benefits, those also vary wildly from province to province. Here in Alberta, you're lucky to find a regular family doctor at all; some people have said that if I had so much trouble with mine, why didn't I just switch doctors...

Because there's nobody to switch to. Unless it's an emergency, I'm more comfortable with female doctors who actually have some clue about some particular issues, and my doctor is finally listening to me and taking everything seriously. She knows now that I do my own reading on things, and I was proved right when it really counted.

I'm not trying to discourage you - just being realistic. While it's true that a serious illness won't usually bankrupt people here or result in them losing the house, it can happen if the medication one needs isn't covered by the province, or if you fall through the cracks in other ways. In my case, my dad was in the hospital but once he was waitlisted for a nursing home, they started charging $$$$... and sending me the bills (after a dementia diagnosis, the patient is deemed no longer competent to make decisions, sign contracts, make financial arrangements... which meant that I was unable to pay certain household bills since the accounts were in my dad's name and they wouldn't make changes without his permission - which he could no longer give).

So do your research. Most things work out, but all it takes is one crazy catch-22 situation to make life very difficult.
 
Have you got this process started? It's not easy to emigrate here. I think your best bet is if you have some specialized skills that could get you employed as a doctor or something similar, but don't quote me on that.

I married a Canadian.

It helps to plan ahead. :D
 
Thank you.

Which part of Canada do you have in mind? You need to research this carefully, as some provinces cover different things, and sometimes for different age groups. And if she needs disability benefits, those also vary wildly from province to province. Here in Alberta, you're lucky to find a regular family doctor at all; some people have said that if I had so much trouble with mine, why didn't I just switch doctors...

Because there's nobody to switch to. Unless it's an emergency, I'm more comfortable with female doctors who actually have some clue about some particular issues, and my doctor is finally listening to me and taking everything seriously. She knows now that I do my own reading on things, and I was proved right when it really counted.

I'm not trying to discourage you - just being realistic. While it's true that a serious illness won't usually bankrupt people here or result in them losing the house, it can happen if the medication one needs isn't covered by the province, or if you fall through the cracks in other ways. In my case, my dad was in the hospital but once he was waitlisted for a nursing home, they started charging $$$$... and sending me the bills (after a dementia diagnosis, the patient is deemed no longer competent to make decisions, sign contracts, make financial arrangements... which meant that I was unable to pay certain household bills since the accounts were in my dad's name and they wouldn't make changes without his permission - which he could no longer give).

So do your research. Most things work out, but all it takes is one crazy catch-22 situation to make life very difficult.

Understood. We have a lot of family in Canada, so we aren't going into this blind. We'll almost certainly be in Ontario. It will also save us a huge amount on tuition - my wife pursued her PhD at UofT, and still has a lot of contacts there.
 
Yeah that'll work :goodjob:

What's your hockey team of choice?

Whatever province I end up in. :D So looks like the Leafs. I'm not a huge hockey fan, but I'll have several enthusiastic family members to help bridge that gap. I just know not to mention that Canada cheated in the Summit Series. My wife still won't talk to me about that. LOL.
 
I guess being a life long Black Hawks Fan disqualified my from any chance at immigrating. :D
 
IT's like a papal dispensation. History SHOULD count for something. :lol:
 
Iono. Is it again yet?
 
Ugh, now I know why you reacted so badly to my postings about hunter-gatherers having optimal human health. The only advice I can give you is that your mind is still healthy. Is there any reason you couldn't be a lawyer or academic?

My mind isn't healthy, I just do a very good job of hiding it. :) I typically don't interact with people during the bad moments and it shows during mentally intensive activities so that's something I try to avoid doing around other people. Most of it is tied to my physical health, though, if I'm to be honest. There's the stereotypical "brain fog" but there's also the fact that my health puts me in a position where there'll be bouts of intensified pain or nausea, or cramps, throughout the day at random moments making it difficult if not impossible to commit to anything for more than 20-30 minutes.

I've always found it difficult to describe. The best analogy I have for it is an uncontrollable itch. My brain feels itchy, and using it more makes it itch more. The moments where I can be sufficiently fluent or reasoned in a significant capacity (like the superbly long post you quoted) are few and far between. It's a big part of why my "at home" career as a writer has petered out and my portfolio has become outdated. I can't keep up with the brain power that's consistently needed day-in day-out.

One of the biggest consequences I've found is losing the ability to parse out complex systems in my mind. It used to be that I could imagine a system (like, say, a machine) and take it apart mentally to see how it works or to figure out how to fix it if it's broken. I could have my thoughts branch out into several different directions and have it all make sense to me at any given moment, lending me the ability to understand complicated ideas easily. This is no longer the case. My mind is mostly restricted to singular paths of thought now or, if there requires branching out, I have to do it step by step repeatedly if I hope to hold onto the understanding I've gained.

It's why I don't get into heated, extended debates here on CFC and it's also why I don't bother talking about things I don't have a vested interest in. It used to be that I could soak up knowledge about things I don't care about, but these days it's hard enough to hold onto knowledge about things I do care about. My ability to churn out 300+ word detailed arguments is essentially nonexistent at this point unless you catch me on a good day, and even then it's unlikely that I would be able to do it more than two or three times before that opportunity passes. It helps if I have an emotional reason to get something produced. ;)

Which part of Canada do you have in mind? You need to research this carefully, as some provinces cover different things, and sometimes for different age groups. And if she needs disability benefits, those also vary wildly from province to province. Here in Alberta, you're lucky to find a regular family doctor at all; some people have said that if I had so much trouble with mine, why didn't I just switch doctors...

Because there's nobody to switch to. Unless it's an emergency, I'm more comfortable with female doctors who actually have some clue about some particular issues, and my doctor is finally listening to me and taking everything seriously. She knows now that I do my own reading on things, and I was proved right when it really counted.

I'm not trying to discourage you - just being realistic. While it's true that a serious illness won't usually bankrupt people here or result in them losing the house, it can happen if the medication one needs isn't covered by the province, or if you fall through the cracks in other ways. In my case, my dad was in the hospital but once he was waitlisted for a nursing home, they started charging $$$$... and sending me the bills (after a dementia diagnosis, the patient is deemed no longer competent to make decisions, sign contracts, make financial arrangements... which meant that I was unable to pay certain household bills since the accounts were in my dad's name and they wouldn't make changes without his permission - which he could no longer give).

So do your research. Most things work out, but all it takes is one crazy catch-22 situation to make life very difficult.

Valka brings up good points, @demiurgenext. While going to the hospital and seeing specialists won't bankrupt you here as it would in the US, there are still many costs to healthcare in Canada. There are many services that aren't covered by the provincial insurance, as well as medications and equipment. I've spent probably $2000 in the last two years on healthcare.

Understood. We have a lot of family in Canada, so we aren't going into this blind. We'll almost certainly be in Ontario. It will also save us a huge amount on tuition - my wife pursued her PhD at UofT, and still has a lot of contacts there.

Ontario is the best choice for access to disability. :) Vancouver is where I needed to be but Ontario is ahead in many respects when it comes to healthcare and the benefits surrounding that.
 
Valka brings up good points, @demiurgenext. While going to the hospital and seeing specialists won't bankrupt you here as it would in the US, there are still many costs to healthcare in Canada. There are many services that aren't covered by the provincial insurance, as well as medications and equipment. I've spent probably $2000 in the last two years on healthcare.

Yeah.. My friend does not have health insurance through his work (it's a small company) and as a result gets no coverage at all for his teeth or anything related to that. He's had a cavity for years and now it got infected and he doesn't know what to do. I have urged him to head to an emergency clinic but we'll see what happens..
 
Yeah.. My friend does not have health insurance through his work (it's a small company) and as a result gets no coverage at all for his teeth or anything related to that. He's had a cavity for years and now it got infected and he doesn't know what to do. I have urged him to head to an emergency clinic but we'll see what happens..

Dentistry schools! They often offer discounts or hold free dentistry appointments once or twice a year.

I haven't gone to a dentist in 3 years and I'm starting to feel it. :( Luckily, disability in BC (once you finally get on it) does provide some dental coverage per year. Not much but enough to get everything checked out and tinkered with every year.
 
Yeah that's another thing I told him to look into actually. There is a student clinic here on campus and they were able to remove two of my wisdom teeth for $20 a pop 10 years ago. This .. Turkish dentist did it actually, she had 15 years of dentistry experience in Turkey, but needed to re-do her certifications or whatever so she had to go through that process and as part of it work at that student clinic or whatever. So they said she was more than experienced enough to pull out my 2 wisdom teeth. Mind you the upper 2 wisdom teeth that needed to be removed had to be referred to a non-Turkish dentist who did it at $200 a pop or something like that IIRC.

So I told my friend about this too but he's a bit set in his ways and might not do it. We'll see. I hope he gets his infection figured out, they've got him on antibiotics now

I am lucky, my employer gives me excellent health and dental benefits. I'm at my dentist a couple times a year doing cleanings and all sorts of other things. I pay 20% of the cost. The first time I went, right after I got my benefits, they found 8 cavities and filled them all.
 
Back
Top Bottom